Sweet dreams are made of these

As expected this weekend has been a funny one.  In total I think I managed about six hours of being awake yesterday and roughly the same today which even when you consider the bonus hour that we were donated by clocks going back is not a lot of time to do anything.  Of course it doesn't matter; I will sleep as much as I need to whilst I am dealing with the consequences of this week's round of toxic battle,  but it does give rise to a strange feeling at the close of the weekend when I would normally look back and assess whether it was a good weekend or not.  In this case, however I think it has been a compacted, but good weekend.

Firstly, after Friday's meeting with the Consultant Oncologist who confirmed the dates for the final cycle of this part of the programme, we have booked our reward holiday.  The turquoise waters and soft white sands will be beneath my feet in exactly 13 weeks time.  Woo hoo! It was all booked and organised by 9am on Saturday morning thanks to the wonders of the internet, and so I have had lots of time since to day dream and think about it.  Secondly, due to the amazing skills of a Pain Specialist Nurse called Sarah, or St Sarah as we shall hereby refer to her, I now seem to have my main levels very much under control.  She sat down with me and reviewed the medication from the GP and whilst what the GP was doing was going in the right direction, it was too conservative and so too slow paced and so was not doing enough to quash the pain. I am amazed at how quickly St Sarah has been able to implement her plan, to the extent that it was reviewed on Friday and will be tweaked a couple of times a week on an ongoing basis to make sure that all pain is eliminated, allowing me to focus on the real task in hand of remaining positive and fighting the bad cells.  It is with great relief therefore that I have been able to spend my awake time (despite its low quantiy) this weekend in a relative degree of comfort which is always a bomus.  As a direct result I have been able to revert back to my old self and have utilised some of my awake time on useful practical things which last week were just too much effort.  I have filed and sorted all of my medical notes and records, I have finally removed the giant carborad box of recycling and general rubbish from the spare room and out it in the relevant bins thus creating a satisfying clear space indoors.  I have researched and ordered a new microwave, after our last one burned out and was removed from our kitchen almost a year ago. This action was also prompted by the fact that we have arranged for the BF, the Vet and their two munchkins to come and stay in a couple of weekend's time prior to the next cycle, and I could not bear to have the BF stomp round the kitchen again complaining about having to sterilise baby bottles in a saucepan rather than a microwave..... how 1980's apparently....

I also researched and found the perfect wardrobe for the spare room to continue the initiative of sorting out the room so it is not just a general dumping ground for clothes.  Well I thought I had found the perfect wardrobe, until I measured the ceiling height and realised it won't fit, but at least I have a good idea now about what kind of thing I am looking for. In addition, there were several loads of washing done, clean sheets put on my bed and a few other things which gave me great satisfaction from being able to tick them off the list. I also enjoyed spending almost an hour on the phone to my university friends as getting to the reunion party this weekend was a stretch too far, but instead we had a pass the phone session between London and Milton Keynes catching up on all their news, and I also caught up with the BF, Little Sis and Bil. In short, I think what I am trying to say, is that without chronic pain, I was able to be more like me again.

The only fly in the ointment really has been that whilst yesterday I did manage to co-ordinate my sleep time with Mr Man being out playing hockey so I could spend some quality awake time with him, today I was only really awake this morning whilst he was having a lie in and since then we have not really had much time when both my eyelids and brain cells, and his were simultaneously open.  Oh well, it is only one weekend, there will be plenty of others, and we also have the Maldives to look forward to, where I am sure we will manage to synchronise sleep patterns.  And on that sweet dream, I am off to bed again.  My eyelids are getting heavy.